Enhancing palliative care in ICU (EPIC)
Third Party Funds Group - Sub project
Acronym: EPIC
Start date : 01.01.2024
End date : 31.12.2028
Overall project details
Overall project
Enhancing palliative care in ICU
Project details
Short description
Short description
Das Ziel des Projektes ist es die Palliativversorgung für Patientinnen, Patienten und deren Familien auf der Intensivstation zu verbessern.
Eine interdisziplinäre Forschungsgruppe arbeitet daran die Palliativversorgung durch den Einsatz von Telemedizin zu verbessern. Sieben Kliniken aus fünf europäischen Ländern sind beteiligt.
Zusammen mit der Charité in Berlin verantwortet die Palliativmedizin in Erlangen ein Teilprojekt. Die Aufgabe des Teilprojektes ist es eine sog. “Patient and Family Advisory and Support Group“ aus Personen zusammen zu stellen, die Erfahrungen mit der Palliativversorgung auf der Intensivstation als Patientinnen, Patienten oder Angehörige haben. Das Ziel ist, dass in der Gruppe
- ein Austausch zu den Erfahrungen (auch international) stattfinden kann
- Informationen erstellt werden, die für andere betroffene Personen zur Verfügung gestellt werden können, und
- Aspekte anderer Teilprojekte diskutiert werden, beispielsweise die Schulung von Mitarbeitenden der Intensivstation.
Konsortialleitung: Prof. Dr. Claudia Spies (Charite, Berlin)
Teilprojektleitung Erlangen: Prof. Dr. Christoph Ostgathe, PD Dr. Dr. Maria Heckel
Scientific Abstract
About 10% of all decedents in the population die after admission to an intensive care unit (ICU). These patients often have distressing symptoms and may receive more intense life-prolonging treatment than they would have chosen, their family members often experience lasting distress from the experience and many ICU physicians and nurses are burdened by their perception of potentially non-beneficial care.
The EPIC project aims to sustainably improve palliative care for critically ill patients and their families in the ICU. An interdisciplinary consortium collaborates to provide a novel harmonized palliative care practice model using telemedicine. The project is the first European interventional study on palliative care in the ICU, using a systems-based approach with proactive patient identification, checklist and blended learning targeted to specific requirements of ICU clinicians. Effectiveness of the new model is assessed through a stepped wedge randomized trial with 7 clinical centers from 5 European countries, 23 multi-disciplinary ICUs and enrolment of 2001 patients. Primary outcome is a reduction in ICU stay to relieve suffering. Cost implications and cost effectiveness will be assessed from different perspectives. An evidence-based patient decision aid for critically ill patients is developed. Additional outcomes serve deepen our understanding of barriers and facilitators and provide ethical recommendations for the use of telepalliative care in civic society.
The vision of EPIC is to contribute to a mind shift from a narrow focus on prolonging life towards more holistic care. A European patient and family advisory group is implemented to engage patients and family members from the start and co-create open-access information to increase acceptance of palliative care. Telemedicine offers a low-cost solution to spread the model to all regions in Europe and open new avenues for patient-centered care.
Involved:
Christoph Ostgathe
Project Leader
Maria Heckel
Project Leader
Christoph Ostgathe
Project Member
Maria Heckel
Project Member
Sandra Kurkowski
Project Member
Manuela Schneider
Project Member
