Dravet-Syndrom e.V.
Association
Location:
Frankfurt am Main,
Germany (DE)
Methodological challenges in outcomes research for early-trials for implementation of new therapies in neuropediatric rare diseases (2025)
Acosta MT, Zaragoza Domingo S, Arango C, Bishop KI, Busner J, Dorffner G, Cerro Id, et al.
Journal article
Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany (2023)
Maltseva M, Schubert-Bast S, Zöllner JP, Bast T, Mayer T, von Spiczak S, Ruf S, et al.
Journal article
Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany (2023)
Maltseva M, Rosenow F, Schubert-Bast S, Flege S, Wolff M, von Spiczak S, Trollmann R, et al.
Journal article