How the implementation of a school for people with Parkinson’s disease can succeed—Results of a consensus study and a formative evaluation Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann – Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation

Gerschel T, Prokop S, Schulze L, Feige T, Zschieschang A, Barbe MT, Bitterlich R, Caffier J, Csoti I, Eggers C, Gaßner H, Gülke E, Hähnel T, Herbst H, Jochim A, Kiparski A, Klietz M, von Liel A, Lingor P, Loewenbrück K, Maetzler W, Pürner D, van Riesen C, Schmitz-Pfeiffer H, Süß T, Tönges L, Weiß D, Wolz M, Falkenburger B (2024)

Publication Type: Journal article

Publication year: 2024

Journal

Der Nervenarzt Springer

Book Volume: 95

Pages Range: 539-543

Journal Issue: 6

DOI: 10.1007/s00115-024-01639-z

Abstract

Background: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson’s disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson’s disease with skills to manage the disease better and to participate in shared decision making. Material and methods: To prepare the implementation of a concept for patient education for people with Parkinson’s disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis. Results: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6–8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents. Discussion: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.

Authors with CRIS profile

Heiko Gaßner Department of Molecular Neurology

Involved external institutions

Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) DE Germany (DE) Universitätsklinikum Carl Gustav Carus Dresden DE Germany (DE) Universitätsklinikum Schleswig-Holstein (UKSH) DE Germany (DE) Elblandklinikum Meißen DE Germany (DE) Universitätsklinikum Köln DE Germany (DE) Universitätsklinikum Hamburg-Eppendorf (UKE) DE Germany (DE) Gertrudis-Klinik Parkinson-Zentrum-GmbH DE Germany (DE) Knappschaftskrankenhaus Bottrop DE Germany (DE) Neurozentrum Stuttgart DE Germany (DE) Klinikum rechts der Isar DE Germany (DE) Medizinische Hochschule Hannover (MHH) / Hannover Medical School DE Germany (DE) Universitätsklinikum Göttingen DE Germany (DE) Neurologisches Fachkrankenhaus für Bewegungsstörungen / Parkinson DE Germany (DE) Katholisches Klinikum Bochum (St. Josef- und St. Elisabeth-Hospital gGmbH) DE Germany (DE) Universitätsklinikum Tübingen DE Germany (DE)

How to cite

APA:

Gerschel, T., Prokop, S., Schulze, L., Feige, T., Zschieschang, A., Barbe, M.T.,... Falkenburger, B. (2024). How the implementation of a school for people with Parkinson’s disease can succeed—Results of a consensus study and a formative evaluation Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann – Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation. Der Nervenarzt, 95(6), 539-543. https://doi.org/10.1007/s00115-024-01639-z

MLA:

Gerschel, Tanita, et al. "How the implementation of a school for people with Parkinson’s disease can succeed—Results of a consensus study and a formative evaluation Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann – Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation." Der Nervenarzt 95.6 (2024): 539-543.

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