Perception and management of cancer predisposition in pediatric cancer centers: A European-wide questionnaire-based survey.
Lazic J, Haas OA, Özbek U, Ripperger T, Byrjalsen A, te Kronnie G, Sayitoğlu M, Ng OH, Agaoglu NB, Erbilgin Y, Senturk G, Khodzhoev K, Sudutan T, Altıner S, Ozdemir GN, Demirsoy U, Yilmaz CD, Ruml J, Yalcin K, Ili EG, Pantic I, Vukovic M, Mlynarski W, Pastorczak A, Bosch JvdWT, Schlegelberger B, Slamova L, Loeffen J, Garcia-Orad A, Metzler M, Reismüller B (2023)
Publication Type: Journal article
Publication year: 2023
Journal
Book Volume: 70
Journal Issue: 5
DOI: 10.1002/pbc.30229
Abstract
The European Union-funded COST Action (LEukaemia GENe Discovery by data sharing, mining, and collaboration) LEGEND was an international and multidisciplinary collaboration between clinicians and researchers that covered a range of aspects of genetic predisposition in childhood leukemia. Within this framework, we explored the perception and handling of genetic predisposition in the daily practice of European treatment centers. Herein, we present the results of our questionnaire-based survey. We found that the overall awareness is quite high, and respondents remarked that identification and treatment of the most common predisposition syndromes were present. Nevertheless, high demand for continuous education and routinely updated resources remains.
Involved external institutions
University Children's Hospital / Univerzitetska dečja klinika u Beogradu (Tiršova)
Serbia (RS)
Medizinische Universität Wien
Austria (AT)
Acıbadem Mehmet Ali Aydınlar University / Acıbadem Mehmet Ali Aydınlar Üniversitesi
Turkey (TR)
Medizinische Hochschule Hannover (MHH) / Hannover Medical School
Germany (DE)
Rigshospitalet
Denmark (DK)
University of Padua / Universita degli Studi di Padova
Italy (IT)
Serbia (RS)
Medizinische Universität Wien
Austria (AT)
Acıbadem Mehmet Ali Aydınlar University / Acıbadem Mehmet Ali Aydınlar Üniversitesi
Turkey (TR)
Medizinische Hochschule Hannover (MHH) / Hannover Medical School
Germany (DE)
Rigshospitalet
Denmark (DK)
University of Padua / Universita degli Studi di Padova
Italy (IT)
How to cite
APA:
Lazic, J., Haas, O.A., Özbek, U., Ripperger, T., Byrjalsen, A., te Kronnie, G.,... Reismüller, B. (2023). Perception and management of cancer predisposition in pediatric cancer centers: A European-wide questionnaire-based survey. Pediatric Blood & Cancer, 70(5). https://dx.doi.org/10.1002/pbc.30229
MLA:
Lazic, Jelena, et al. "Perception and management of cancer predisposition in pediatric cancer centers: A European-wide questionnaire-based survey." Pediatric Blood & Cancer 70.5 (2023).
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