A real-world rheumatology registry and research consortium: The German RheumaDatenRhePort (RHADAR) registry

Kleinert S, Bartz-Bazzanella P, von der Decken C, Knitza J, Witte T, Fekete SP, Konitzny M, Zink A, Gauler G, Wurth P, Aries P, Karberg K, Kuhn C, Schuch F, Späthling-Mestekemper S, Vorbrüggen W, Englbrecht M, Welcker M, Ronneberger M, Rapp P, Wendler J, Baltrusch S, Popp F, Sternad P, Edhofer A, Poveda EG, Rottländer YC, Kramer S, Schulte B, Merkle R, Gruber D, Körber N, Fricker A (2021)

Publication Type: Journal article, Review article

Publication year: 2021

Journal

Journal of Medical Internet Research Journal of Medical Internet Research / Gunther Eysenbach

Book Volume: 23

Article Number: e28164

Journal Issue: 5

DOI: 10.2196/28164

Abstract

Real-world data are crucial to continuously improve the management of patients with rheumatic and musculoskeletal diseases (RMDs). The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. The RHADAR modules allow automated anamnesis and adaptive coordination of appointments regarding individual urgency levels. Further modules focus on the collection and integration of electronic patient-reported outcomes in between consultations. The digital RHADAR modules ultimately allow a patient-centered adaptive approach to integrated medical care starting as early as possible in the disease course. Such a closed-loop system consisting of various modules along the whole patient pathway enables comprehensive and timely patient management in an unprecedented manner.

Authors with CRIS profile

Johannes Knitza Department of Medicine 3 – Rheumatology and Immunology

Involved external institutions

Technische Universität Braunschweig DE Germany (DE) Praxisgemeinschaft Rheumatologie - Nephrologie DE Germany (DE) Medizinisches Versorgungszentrum (MVZ) für Rheumatologie Dr. Martin Welcker GmbH / MVZ for rheumatology DE Germany (DE) Medizinische Hochschule Hannover (MHH) / Hannover Medical School DE Germany (DE) Verein zur Förderung der Rheumatologie e.V. DE Germany (DE) Technische Universität München (TUM) DE Germany (DE) Medizinisches Versorgungszentrum (MVZ) Stolberg DE Germany (DE) Rheumatologie im Struenseehaus DE Germany (DE)

How to cite

APA:

Kleinert, S., Bartz-Bazzanella, P., von der Decken, C., Knitza, J., Witte, T., Fekete, S.P.,... Fricker, A. (2021). A real-world rheumatology registry and research consortium: The German RheumaDatenRhePort (RHADAR) registry. Journal of Medical Internet Research, 23(5). https://doi.org/10.2196/28164

MLA:

Kleinert, Stefan, et al. "A real-world rheumatology registry and research consortium: The German RheumaDatenRhePort (RHADAR) registry." Journal of Medical Internet Research 23.5 (2021).

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