Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study
Huber J, Muck T, Maatz P, Keck B, Enders P, Maatouk I, Ihrig A (2018)
Publication Type: Journal article
Publication year: 2018
Journal
Book Volume: 12
Pages Range: 1-9
Journal Issue: 1
DOI: 10.1007/s11764-017-0633-0
Abstract
BACKGROUND: As social media are evolving rapidly online support groups (OSG) are becoming increasingly important for patients. Therefore, the aim of our study was to compare the users of traditional face-to-face support groups and OSG. PATIENTS AND METHODS: We performed a cross-sectional comparison study of all regional face-to-face support groups and the largest OSG in Germany. By applying validated instruments, the survey covered sociodemographic and disease-related information, decision-making habits, psychological aspects, and quality of life. RESULTS: We analyzed the complete data of 955 patients visiting face-to-face support groups and 686 patients using OSG. Patients using OSG were 6 years younger (65.3 vs. 71.5 years; p < 0.001), had higher education levels (47 vs. 21%; p < 0.001), and had higher income. Patients using OSG reported a higher share of metastatic disease (17 vs. 12%; p < 0.001). Patients using OSG reported greater distress. There were no significant differences in anxiety, depression, and global quality of life. In the face-to-face support groups, patient ratings were better for exchanging information, gaining recognition, and caring for others. Patients using OSG demanded a more active role in the treatment decision-making process (58 vs. 33%; p < 0.001) and changed their initial treatment decision more frequently (29 vs. 25%; p < 0.001). CONCLUSIONS: Both modalities of peer support received very positive ratings by their users and have significant impact on treatment decision-making. IMPLICATIONS FOR CANCER SURVIVORS: Older patients might benefit more from the continuous social support in face-to-face support groups. OSG offer low-threshold advice for acute problems to younger and better educated patients with high distress. TRIAL REGISTRATION: www.germanctr.de , number DRKS00005086.
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Germany (DE)How to cite
APA:
Huber, J., Muck, T., Maatz, P., Keck, B., Enders, P., Maatouk, I., & Ihrig, A. (2018). Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study. Journal of Cancer Survivorship, 12(1), 1-9. https://doi.org/10.1007/s11764-017-0633-0
MLA:
Huber, Johannes, et al. "Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study." Journal of Cancer Survivorship 12.1 (2018): 1-9.
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